Codebook
24 codes
Decision-Making
Information Overwhelm
18
Diagnostic Uncertainty
7
Consent Literacy
11
Participation Barriers
9
System Factors
System Gaps
14
Follow-up Failure
6
Communication Breakdown
12
Social Context
Family Dynamics
15
Caregiver Burden
8
Peer Support Networks
10
Information Overwhelm
CODE_DM_001 · Parent Theme: Decision-Making
18
Coded Segments
4
Documents
0.91
Avg. Confidence
3
Coders Applied
Definition
Instances where participants report feeling unable to process, prioritize, or make sense of the volume of clinical, procedural, or administrative information presented to them during or after a diagnosis. Includes both cognitive overload and emotional responses to information density.
Inclusion Criteria
Apply when participant explicitly mentions feeling overwhelmed, confused, lost, or unable to process clinical information. Also applies when they describe deferring decisions due to information complexity.
Representative Excerpts
"I felt completely overwhelmed by the amount of information being presented to me by multiple specialists."
"There were so many forms, so many names of treatments — I just shut down mentally after the first hour."
"My head was spinning. I went home and couldn't remember half of what they had told me."